National Physical and Sensory Disability Database (NPSDD)

Data Collection Type
National data collections of health and social care in Ireland
Organisation

Health Research Board, Department of Health

Year established

2002

Statement of purpose

The National Physical and Sensory Disability Database (NPSDD) is a service planning tool designed to capture data on the usage of and need for specialist disability services among people with physical and sensory disability.

Coverage

National. There are approximately 23,000 people registered on the database. (Registration is limited to individuals aged less than 66 years with a physical/sensory disability who are availing of, or who require, a specialised health or personal social service and who consent to register on the database.)

Description

NPSDD is a set of information that outlines the specialised disability services currently used or needed by people with physical/sensory disability.

Data content

Personal and demographic details include date of birth, gender, primary carer details and living accommodation/arrangements.
Service use information includes details of current services use and future service needs, technical aids and appliances, barriers and challenges, measure of participation restriction and The World Health Organization Disability Assessment Schedule II (WHODAS II), a measure that records difficulty indivduals have in performing particular daily activities over a period of 30 days.

Data providers

Personal and demographic details include date of birth, gender, primary carer details and living accommodation/arrangements.
Service use information includes details of current services use and future service needs, technical aids and appliances, barriers and challenges, measure of participation restriction and The World Health Organization Disability Assessment Schedule II (WHODAS II), a measure that records difficulty indivduals have in performing particular daily activities over a period of 30 days.

Data collection methodology

The system is web-based. The HSE areas administer the NPSDD, but some service providers are responsible for the registration and review of their service users. Individuals wishing to participate are interviewed by their key worker or a data collector. A database form is completed and the data is recorded in the database by the service provider or HSE personnel.

Data dictionary

Under revision as part of HRB LINK project.

Clinical coding scheme

Proprietary system based on International Classification of Diseases and Related Health Problems, Tenth Revision (ICD-10) for diagnostic information (primary and secondary diagnosis); International Classification of Functioning, Disability and Health (ICF) for Measure of Activity and Participation (MAP) data.

Size of national collection

Approximately 23,000 records created on average annually.

Publication frequency

Data are collected on an ongoing basis and extracted each year to produce an annual report and Community Healthcare Organisations (CHO) bulletins for the HSE. Bulletins are also published on the Measure of Activity and Participation (MAP) data.

Accessing data

Data requests.
Reports/publications.
Reports module and query tool. Available to HSE and service providers; access is based on role and level of responsibility.

Open data portal access

Yes

Email contact
Telephone contact
Other comments

Will be merged with the HRB’s National Intellectual Disability Database (NIDD) as part of the HRB LINK project. Roll out to commence in 2017.