Quality data play an integral role in evidence-based policy making, informing practice and the provision of quality care within our health and social care services. Publishing data collected from within health and social care services, so that it is findable, accessible, interoperable and reusable (FAIR data) is important as it maximises the potential for use and can stimulate innovation. Compiling data at a national level facilitates analyses that can help us to better understand current practices, determinants and gaps that may not be evident when smaller datasets are used.
As part of the LENS Project, we have assembled a comprehensive dataset of the statutory notifications received by HIQA from designated centres for older persons and people with disabilities in Ireland since the introduction of an electronic system for receipt of notifications in 2013. The database includes detail on the occurrence of an adverse event, and includes for example, the timing of the event, the people present, the risk rating assigned, actions taken in the aftermath. The database also includes demographic detail on the centre, including for example, bed numbers, staff/resident ratios and distance to an acute hospital.
The aim was to create an analysable repository of notifications received and to make the information readily accessible and reusable. As such, we have published an open access version of the database. For reasons of privacy and to protect the identity of people living in these services, it is necessary to desensitise the dataset in order to make it publicly available. All data that could potentially identify a person has been removed from the dataset. Notwithstanding this, every effort has been made to retain as much data as possible.
The database is updated at the beginning of April each year will the previous year’s notifications.
While these data are freely available for anyone to use, any publications arising out of their use should clearly acknowledged the database. The database can be cited as follows: Health Information and Quality Authority (2020). Database of Statutory Notifications from Social Care in Ireland (Open Access)
The open database can be accessed on Tableau Public by clicking here. We have developed an eLearning course to support you in interpreting and using the data. People who intend to use the database for analyses should complete the eLearning course first. Database of Statutory Notifications from Social Care in Ireland (Open Access): User Guide.
The database is downloadable under publications below. You can also find useful documents to support the use and interpretation of the data under publications.
Any queries on the database can be directed to: firstname.lastname@example.org.