Coronary Heart Attack Ireland Register (CHAIR)

Data Collection Type
Data collections with regional coverage
Organisation

Health Service Executive (HSE) – South/South West Hospital Group.

Year established

2002 (July, roll-out began)
2003 (May, roll-out complete for all eight hospitals in Cork and Kerry).

Statement of purpose

The aim of CHAIR is to gather information on hospital patients admitted with suspected or confirmed acute coronary syndromes (ACS) in order to improve the delivery of healthcare and to improve patient outcomes.

Its objectives are:

- to record, describe and analyse registered patient demographics, diagnostic and treatment details and hospital outcomes
- to facilitate the development of strategies to improve the quality of ACS patient care
- to contribute towards the development of a national plan for the in-patient and community management of patients with ACS
- To provide data for the Heartbeat portal to support NOCA IHAA.

Coverage (geographical and temporal)

Pilot in HSE - South (Cork and Kerry and South Tipperary) region. Private hospital participation.

Data collection commenced in 2002 and is ongoing.

Description/Summary

CHAIR is a computer register that gathers information on hospital patients admitted with suspected or confirmed acute coronary syndromes in order to improve the delivery of healthcare and to improve patient outcomes on discharge from hospital. Acute coronary syndromes (ACS) include heart attack (myocardial infarction) and unstable angina. In mid-2007 CHAIR adopted the European Cardiology Audit and Registration Data Standards (CARDS) Acute Coronary Syndromes (ACS) dataset and became known as CHAIR/CARDS ACS.

Data users

CHAIR Programme Team, Consultant Cardiology teams across South/South West Hospital Group, hospital group business managers.

Data content

CHAIR information covers nine distinct areas: patient demographics; admission Details; thrombolysis details; risk factors; clinical details (procedures); investigations; medications at discharge; discharge details; follow up details.

CHAIR/CARDS ACS information covers ten distinct areas: demographics; history (relevant to CAD); risk factors (relevant to CAD); medication: pre hospital; working diagnosis; investigations and treatment (including thrombolysis); medication: during hospital stay; outcome; medication: at discharge; follow up.

Data dictionary

Data dictionary is in place but is not available online.

National-level identifier variables

No.

Equity stratifiers

Yes:

- Place of residence
- Gender

Data collection methodology

A CHAIR Registration Officer collects the data at each hospital. CHAIR data (2002 to 2007) was essentially in two forms:

- personal data in the local database (within the hospital)
- ‘anonymised’ data (no MRN, no name and no address) in the central database (located in Dublin). The personal data in the hospital database is information from the patient medical record.

In 2007 CHAIR adopted the European CARDS ACS dataset. This entailed new software (and a new software provider) and the use of web-enabled access with data protected within the HSE South firewall.

Clinical coding scheme

N/A.

Size of national collection

Approximately 800 records created on average annually.

Publication frequency

Summary progress reports have been published in the past on the Irish Heart Foundation (IHF) website and CHAIR information presented at various events. CHAIR information has been used for journal publications. CHAIR/CARDS data is presented regularly within the CHAIR hospitals at STEMI meetings and Mortality and Morbidity meetings. Data is used regularly by junior doctors and researchers.

Accessing data

This data is available to the CHAIR Registration Officer and to certain hospital and medical staff. It has protection from public use by way of unique user IDs, passwords and physical access to the system.

Requests for access to the data should be made to the Office of the CEO South/South West Hospital Group.

Open data portal access

No.

Other comments

CHAIR was a Department of Health initiative facilitated by the Southern Health Board beginning in 2001. It was handed over to the HSE (on formation of HSE) which is where it remains. A User Manual and Data Dictionary exist for CHAIR and CHAIR CARDS ACS which are available to Registration Officers.