Heart Rhythm Ireland (Irish National Pacemaker Register)

Data Collection Type
National data collections of health and social care in Ireland
Organisation

G-Pace Ltd.

Year established

2008

Statement of purpose

To provide a registry for implanted cardiac devices in Ireland.

To both public and Private hospitals.

Coverage (geographical and temporal)

38 Hospitals, Approx 50,000 Patients.

The Irish National Pacemaker Register commenced in 2008 and is ongoing

Description/Summary

A web based database which collects information regarding Pacemakers and ICDs. The initial goal for setting up the database was to produce accurate statistics for Irish implant rates for the first time.

Data users

The key users on the registry are physicians, cardiac technicians and administration staff of Heart rhythm Ireland.

Data content

Patient demographics, physicians’ report of implant procedure, device details – e.g. model number and serial number, lead details – e.g. model number, serial number, technicians follow up report.

Data dictionary

Not available.

National-level identifier variables

There is no PPSN or IHI identifier. HRI generate a unique ID number that the hospitals can identify the patient with when they enter the hospital.

Equity stratifiers

Place of residence for the purpose of sending out ID cards.

Data collection methodology

Data is collected electronically at the point of care and entered by clinical staff in the participating hospitals.

The data is uploaded daily as staff enter the data of the device details.

Clinical coding scheme

Not in use.

Size of national collection

Approximately 4,000 records created on average annually.

Publication frequency

Data not currently published. Data entered on a daily basis, as devices are implanted.

Accessing data

Each hospital has full access to data regarding their own patients. They also have access to data of those patients who have consented to be available nationally. Anonymous statistical information is supplied to device manufacturers on a quarterly basis. Data not publicly available currently.

Open data portal access

No.

Telephone contact