National Hepatitis C Database
HSE, Health Protection Surveillance Centre
2005
To follow the natural and treated history of hepatitis C in people infected through blood and blood products administered in Ireland and to evaluate the impact of various host and virus factors on disease progression.
Approximately 77% of eligible patients (those infected with Hepatitis C virus) that have given their consent or that have died are included in the database.
Database of persons infected with hepatitis C through the administration of blood and blood products in Ireland. Objectives of database:
- to follow the natural history of infection in this group of people
- to evaluate the impact of various host factors on the progression of the disease
- to evaluate the outcomes of treatment
- to monitor the uptake of services
- to provide information for the planning and evaluation of health services
- to serve as a resource for future research into hepatitis C.
Patient demographics such as age and sex; how patient became infected; medical conditions; results of tests; treatments received and treatment outcomes.
Hepatology units.
Data collected from medical records in specialist hepatology units across the country by a HPSC Research Nurse. Consent required for all living patients.
Not available.
Cause of death and medical conditions coded using the World Health Organization (WHO) International Classification of Diseases and Related Health Problems, Tenth Revision (ICD-10) system. Medications coded using the Anatomical Therapeutic Chemical (ATC) coding system.
Total number in database: 1,718. Small numbers of additional patients added at each round of data collection.
Every one to three years. Reports published on website, see www.hcvdatabase.ie
Web-based database accessible only through the government virtual private network (VPN). Username and password required. Reports published on website, see www.hcvdatabase.ie.
Data requests can be submitted by email to hcvdatabase@hpsc.ie and will be assessed on a case-by-case basis.
No