National Hepatitis C Database

Data Collection Type
National data collections of health and social care in Ireland
Organisation

HSE, Health Protection Surveillance Centre

Year established

2005

Statement of purpose

To follow the natural and treated history of hepatitis C in people infected through blood and blood products administered in Ireland and to evaluate the impact of various host and virus factors on disease progression.

Coverage

Approximately 77% of eligible patients (those infected with Hepatitis C virus) that have given their consent or that have died are included in the database.

Description

Database of persons infected with hepatitis C through the administration of blood and blood products in Ireland. Objectives of database:

  • to follow the natural history of infection in this group of people
  • to evaluate the impact of various host factors on the progression of the disease
  • to evaluate the outcomes of treatment
  • to monitor the uptake of services
  • to provide information for the planning and evaluation of health services
  • to serve as a resource for future research into hepatitis C.
Data content

Patient demographics such as age and sex; how patient became infected; medical conditions; results of tests; treatments received and treatment outcomes.

Data providers

Hepatology units.

Data collection methodology

Data collected from medical records in specialist hepatology units across the country by a HPSC Research Nurse. Consent required for all living patients.

Data dictionary

Not available. 

Clinical coding scheme

Cause of death and medical conditions coded using the World Health Organization (WHO) International Classification of Diseases and Related Health Problems, Tenth Revision (ICD-10) system. Medications coded using the Anatomical Therapeutic Chemical (ATC) coding system.

Size of national collection

Total number in database: 1,718. Small numbers of additional patients added at each round of data collection.

Publication frequency

Every one to three years.  Reports published on website, see www.hcvdatabase.ie 

Accessing data

Web-based database accessible only through the government virtual private network (VPN). Username and password required. Reports published on website, see  www.hcvdatabase.ie.
Data requests can be submitted by email to hcvdatabase@hpsc.ie and will be assessed on a case-by-case basis.

Open data portal access

No

Email contact
Telephone contact