National Paediatric Mortality Register (NPMR)
National Office of Clinical Audit (NOCA).
1992 under governance of SIDS Ireland, governance transferred to NOCA in 2020.
To provide accurate up to date information on mortality in Ireland to include all deaths in children
National data collected on children
The Paediatric Mortality Register collects and analyses data on all deaths in children
CHI/other hospital groups, HSE, TUSLA, NPEC, paediatricians, Coroners, academia, Irish Hospice Foundation, patient organisations, Proposed NOCA Paediatric Audit Advisory Committee.
Content includes age; sex; infant birth weight; place of death; cause of deaths, hospital transferred from, pathologist, Coroner.
Not currently publicly available.
No.
Age and gender.
Complete notification form forwarded directly to NOCA by hospital.
CSO provides quarterly metadata files of deaths registered. Coroners provide post mortem results.
All data is coded and entered in the register’s database. A coding system is used in order to assist with transfer of data into the statistical software package used for analysis. All data entry, statistical analysis, database management and reporting of results is carried out by NOCA NPMR personnel only. Ongoing annual surveillance means that effects and changes in paediatric death are monitored as they occur, with demographic factors documented alongside.
ICD-10 codes assigned by the CSO (Central Statistics Office).
Approximately 300 deaths registered by CSO annually. Autopsy reports on approximately one third of deaths. All deaths occurring in CHI at Temple St and CHI at Tallaght notified to NPMR = 28 records per year on average.
Annual reports published since 1993.
https://www.noca.ie/about-noca/access-to-audit-data
No.
The register is in the process of developing a strategy for extending its notification to all units nationally.
This register was previously called the National Sudden Infant Death Register. Infant mortality data, issued on a quarterly basis by the CSO, refers to deaths registered during that period. Due to delays in registration, the figures in some cases relate to deaths that occurred in the previous year. This means that SIDS figure from the CSO may differ from those of the register since the register’s figures are based on year of occurrence. The register also includes SIDS deaths in infants over one year of age whereas the CSO restricts its infant mortality figures to those deaths which occurred in infants under one year of age only.