Out of Hospital Cardiac Arrest Register (OHCAR)

Data Collection Type
National data collections of health and social care in Ireland
Organisation

OHCAR is based in the National Ambulance Service. The OHCAR Steering Group is responsible for directing the project.

Year established

2007 (November, North West)
2012 (National).

Statement of purpose

The purpose of the OHCAR register is to facilitate improvements in survival from OHCA in Ireland by fulfilling the following objectives:

- establishing the current OHCA survival rate
- identifying factors that contribute to survival
- identifying what could be done differently to improve survival
- providing regular feedback to service providers.

Coverage (geographical and temporal)

National.

OHCAR started collecting data on a regional basis from 2007 – 2012 and nationally thereafter to present day .

Description/Summary

A project to set up an Irish Out-of-Hospital Cardiac Arrest Register (OHCAR) was established in November 2007 in accordance with the recommendations of the Report of the Task Force on Sudden Cardiac Death (2006). The purpose of the Register is to enable further understanding and research into OHCAR in Ireland. By quantifying and describing cardiac arrests that occur in the community the register will enable:

- Investigation of the determinations of survival/death from OHCAR
- Investigation of the effect of interventions on survival/death
- Monitoring of survival from OHCAR and subsequent quality of life.

Data users

Academics, researchers, HSE and other interested parties

Data content

A summary of data demographics; incident data; vital observations; ECG data; medical treatment; resuscitation data; discharge data from hospitals; first responder data.

Based on international dataset ref: Jacobs et al (2004) Update and Simplification of the Utstein Templates for Resuscitation Registries: A Statement for Healthcare Professionals, Circulation110:3385-3397 http://www.sciencedirect.com/science/article/pii/S030095720400382X

Data dictionary

Yes;

https://www.nuigalway.ie/media/collegeofmedicinenursinghealthsciences/disciplines/generalpractice/5--OHCAR-Data-Dictionary.pdf

National-level identifier variables

No.

Equity stratifiers

Place of residence.

Data collection methodology

The OHCAR data collection continuum begins at receipt of the emergency call and ends at patient discharge from hospital. Summary findings from the data are reported back to ambulance management.

In order that the data on OHCAR can be compared with other registries, data is collected using the internationally agreed Utstein template. Additional data items that are important in the Irish context are also collected. Data is collected daily.

Clinical coding scheme

Not in use, but drop down options based on Utstein dataset.

Size of national collection

3,500 records created on average nationally.

Publication frequency

Summary data are published on a quarterly and annual basis. Quarterly reports are available to the personnel who provide the original data on a regional basis but are not suitable for wider distribution due to risk of patient identification. Eleven annual reports have been published by OHCAR and circulated to a distribution list approved by the OHCAR Steering Group - reports are made available via the Project Manager and are presented in soft copy.

Accessing data

Access to identifiable data restricted to OHCAR Project Manager and OHCAR Administrator only. Anonymised aggregated data made available through annual reports and in form of quarterly reports which are sent to ambulance personnel in participating regions (i.e. original data providers). As regional data numbers are small, personnel are advised that data is for their use only and not to be discussed outside their regional service. This model of data dissemination has been discussed with the Office of the Data Protection Commissioner.

Open data portal access

No.

Email contact
Telephone contact