South East Ireland EUROCAT Registry of Congenital Anomalies (HSE EUROCAT Registry South-East)
Department of Public Health, HSE South-East, in association with EUROCAT central registry http://www.eurocat-network.eu/
1997
To improve the health of the Irish people through the provision of health intelligence on congenital anomalies. In addition to facilitating early warning of new teratogenic exposures, this data is used to inform and evaluate primary prevention of congenital anomalies and to enable the planning of health services for these conditions. They collect information to:
- learn more about congenital anomalies and help research into their causes, treatment and prevention,
- provide early warning of potential harmful exposures that may contribute to anomalies during pregnancy,
- examine the survival and health of babies born with anomalies,
- look at trends and the numbers of babies born with a congenital anomaly in our region,
- participate in local and national research on specific anomalies
- participate and contribute to the European network of congenital anomalies.
The registry provides congenital anomalies surveillance for all births where the mother is resident in counties Carlow, Kilkenny, Wexford, Waterford and South Tipperary.
The registry included data for births for years 1997 onwards. (There has been a delay with collection and uploading of data from year 2020 and 2021.)
There are three active regional congenital anomaly registers in the Republic of Ireland.
All three, EUROCAT South, EUROCAT South-East and EUROCAT East are members of EUROCAT, the European network of congenital anomaly registers, they provide an anonymised computerised register of cases of congenital anomaly born to mothers resident in Ireland. Together the registers cover 60% of all births in Ireland.
The Irish congenital anomaly registries working with the EUROCAT central registry and the EUROCAT network of registries. EUROCAT aims to encourage the use of its data for epidemiological surveillance and research whilst ensuring the protection of complete confidentiality of the data and ensuring that existing knowledge is fully brought to bear on the interpretation of its data. Details available at EUROCAT | EU RD Platform (europa.eu)
Detailed description of the anomaly and baby malformations, demographics of parents and baby such as age, date of birth, weight, date of delivery, parental occupation, medications, smoking and alcohol status, illness during pregnancy and outcome of previous pregnancies
Yes, http://www.eurocat-network.eu/content/EUROCAT-Guide-1.3.pdf
http://www.eurocat-network.eu/aboutus/datacollection/guidelinesforregistration/previouscodingguides/instructionmanuals
No.
Maternal education; Socioeconomic status of mother; Socioeconomic status of father; Migrant status
Mother’s occupation at time of conception included as an exposure variable
A HSE registry nurse gathers and collates data from the data providers on an ongoing basis throughout the year. The registry is based on active case finding. The data is validated and coded data before entering it electronically on the EUROCAT data management Progamme. The anonymised data is uploaded twice annually to the EUROCAT central registry.
ICD-10-AM McKusick/OMIM Code International Standard Classification of Education International Standard Classification of Occupations ATC Code Drug Description.
Approximately 140 cases per annum from 7,500 births ( South east Registry)
Links to annual newsletters and published reports from the registry are available on the HSE registries website. All EUROCAT publications on congenital anomalies are publicly listed on the EUROCAT website EUROCAT | EU RD Platform (europa.eu)
Open access to anonymised data via the EUROCAT website. Researcher access to local anonymised data via a management approval process.
No.
There is no national registry of congenital anomalies. The South East Registry is one of three which between them cover approximately 60% of births in Ireland.
The individual registry contact details are at: https://www.hse.ie/congenitalanomalyregistersireland/