HIQA is holding a public consultation on draft recommendations on a consent model for the collection, use and sharing of health information.
We are developing recommendations for a consent model for the collection, use and sharing of health information in Ireland. A consent model will clearly outline the situations when consent is, and is not, required for the use of personal information in health and social care. This model must follow a rights-based approach, meaning that an emphasis is placed on protecting and promoting people’s rights and respecting their autonomy, privacy, dignity, and their values, preferences and diversity.
These draft recommendations set out a model which outlines when consent is required from people for the collection, use and sharing of their information. The recommendations also include proposed definitions for relevant terms; the legislation, governance structures and technical and operational considerations needed to support the consent model; and the need for effective public engagement in this area.
It is envisioned that implementation of these recommendations will make the process of the collection, use and sharing of health information clearer, and ensure that people’s rights in relation to the privacy and security of their health information are upheld. It is also anticipated that improved legislation and governance structures in this area will encourage a more appropriate and optimal use of health information to support both direct patient care and reasons beyond direct care, such as effective management and planning of health and social care services, improving the quality of care delivery, and health research.