National Oncology Drugs Management System

Data Collection Type
National data collections of health and social care in Ireland
Organisation

National Cancer Control Programme (NCCP), Health Service Executive

Year established

Data collection commenced September 2012. Reporting process commenced April 2013.

Statement of purpose

To coordinate and manage the use of cancer drugs nationally. The full statement of purpose can be found at this link [PDF].

Coverage (geographical and temporal)

National – there are 26 acute public hospitals nationally that provide cancer drug services and participate in the National Cancer Drug Management Programme.

Data collection is on a continuous basis to enable a funding mechanism.

Description/Summary

The National Cancer Drug Management Programme coordinates and manages the use of cancer drugs nationally. A key component of the programme is the Oncology Drugs Management System, which is operated by the Primary Care Reimbursement Service (PCRS) on behalf of NCCP. This online based system is designed to collect information from hospitals on an ongoing basis in relation to patient demographic data, cancer drug use and cancer drug spending.

Data users

National Cancer Control Programme, Primary Care Reimbursement Service, CPU

Data content

Patient information includes: name; date of birth; gender; address; contact details (if available); PPS or medical card number or long term illness card number (if available).

Data dictionary

Yes, but not available online.

National-level identifier variables

PPSN.

Equity stratifiers

Place of residence.

Data collection methodology

Hospital staff input the required data into an online system. The system is managed and operated by PCRS. Anonymised aggregated reports from the system are provided by PCRS to NCCP.

Data is collected monthly.

Clinical coding scheme

ICD-10.

Size of national collection

21,030 claims submitted – 2021
17,019 claims submitted – 2020
15,640 claims submitted - 2019

Publication frequency

Hospitals update data on an ongoing basis, as cancer drugs are dispensed. Ongoing reports provided to NCCP by PCRS.

Accessing data

Monthly HSE Performance Report, NCCP annual report, data requests.

Open data portal access

No.

Telephone contact