National Renal Transplant Registry

Data Collection Type

National data collections of health and social care in Ireland

Organisation

Beaumont Hospital

Web address

http://www.beaumont.ie/

Year established

2002

Statement of purpose

The national registry is maintained for the recipients of renal and pancreas transplants and this aids the annual follow up of patients which is essential for the long-term survival of the allograft. The upkeep of a national registry is also required by law (SI No325/2012) which came into effect in August 2012 in compliance with EU Directive 2010/53/EU on Standards of Quality and Safety of Human Organs intended for Transplantation. The upkeep of the National Registry must also at all times comply with DIRECTIVE 95/46/EC of 24 October 1995 on the protection of individuals with regard to the processing of personal data and on the free movement of such data.

Coverage

All consecutive renal transplants from 1964 to date.

Description

This database is a renal database collecting data since 1964. It is used to assess graft survival and patient survival, monitor factors affecting outcome and monitor performance.

Data content

Includes details on parameters at time of transplant, renal disease and source of transplant. Patient details include: gender; area of residence and date of birth.

Data providers

Medical and nurse specialists in renal units throughout the Republic of Ireland.

Data collection methodology

Data is collated in the renal unit from healthcare records and laboratory reports.

Clinical coding scheme

European Dialysis and Transplant Association (EDTA) renal disease code.

Publication frequency

Ongoing. Continuously updated.

Accessing data

Beaumont Hospital Transplant Nephrology and Urology.

Other comments

This template has not been updated since Version 2.0 of the Catalogue in 2014